Sickle cell disease (SCD) is a group of blood disorders typically inherited from a person's parents. The most common type is known as sickle cell anemia (SCA) (NHLBI, 2016). Patients with SCA suffer most severely, and these diseases represent a significant global public health concern especially contributing to mortality and morbidity to children under 5years of age. About 80% of sickle cell disease cases is reported to occur in Sub-Saharan Africa resulting to 114,800 deaths (Glassberg, 2011). In Uganda, Sickle cell trait prevalence currently stands at 13.3% while disease prevalence stands at 0.73% and every year, about 12,000 to 16,000 children below five years die of sickle cell disease with districts of Gulu, Lira, Kitgum, Dokolo, Oyam (Northern Uganda), Tororo, Jinja and Kampala witnessing a high burden with a prevalence of 20% and a disease burden ranging between 1% to 5% contributing 15% of under mortality and increasing the hospitalization cost (MoH, 2017). At Gulu referral hospital, there are currently 875 enrolled patients with new cases being registered every clinic day. The disease adversely affects quality of life of patients coupled with stigmatization and trauma resulting to poor cognitive development, growth, school performance, poor nutrition and health. According to WHO, creating awareness, good medical care, optimum nutrition and home based management can improve the quality of lives of these vulnerable people.
Despite of these recommendations, a survey carried out by AFNA supported by Gulu regional referral hospital revealed that, urgent intervention is needed to support these people and inform the general public about this silent killer.
In response to this, AFNA is integrating self-care programs to provide psychosocial therapy, create awareness, train home based disease management practices among others using mobile health interventions in a care group strategy. To enable better livelihood and sustainability, the organization is empowering these people through projects of nutrition, agriculture, environment and livelihood for best quality of life.
We are currently running programs that are aimed at improving lives of human kind with limited resources. These programs include WASH, HEALTH, NUTRITION, ENVIRONMENT, AND AGRICULTURE all these require support from well wishers
AFNA Uganda is an Organization that is purely operated by volunteers who work tirelessly to support more than 10 activities in Northern Uganda. We therefore call upon volunteers all over the world to volunteer with AFNA Uganda.
AFNA Uganda has not got any legal donor for any ongoing projects. All the projects are being run with personal funds and community contribution as well as Gulu referral Hospital. With the little support we have got we have managed to implement our projects that has registered success among 1,350 benefitiaries yet our target is to reach over 50,000. Its therefore, upon this background that AFNA requests donations from Organizations, Indiviatuals and any other well wishers so that we can change the lives of over 50,000 people.